- CLIENT STORIES
Every Story. Every Voice. Unfiltered.
Below is every testimonial we've received from clients who completed the HD Genetics testing process — we didn't pick our favorites. Each response was shared with us after results disclosure, because the HD community deserves transparency about what working with us actually looks like.
Real reflections from our post-results survey · Updated regularly · Spanning every year since 2022
It is so clear that HD Genetics was made by our community.
I am so thankful for being so picky with my testing process and had a hard time. From my experience of trying to get tested anonymously it was so hard and felt so scary. HD genetics asked every question and prepared my husband and I so well. It is so clear that HD genetics was made by our community and it will change so many lives for the better, making sure they are not alone and not forgotten about after your results. They prepare you to feel confident in your decision no matter what the outcome is. They provided us with a safe place during the hardest moment of our entire life. We are forever grateful that we chose HD Genetics. If you are on the fence about testing, they ask you the questions to give you clarity. If you want to test anonymously but get the respect and answers you are looking for HD genetics will help you.
Caring, knowledgeable and compassionate service.
Caring, knowledgeable and compassionate service. Thank you for helping me navigate through this daunting process.
The entire experience is centered around your wants and needs.
Our experience with HD Genetics was outstanding. Wes and BJ made this experience as easy as possible. They do everything so thoughtfully, carefully, and the entire experience is centered around your wants and needs. They have a wealth of knowledge and go out of their way to make sure that you have everything you need! I would a million times over recommend HD Genetics to anyone!
Wes and BJ are so genuine and authentic in their delivery of the complicated world of Huntington's Disease.
Wes and BJ are so genuine and authentic in their delivery of the complicated world of Huntington’s Disease. They are welcoming to all questions and emotions that overwhelm you while trying to understand the disease. Every question, no matter how simple, was held in high regard and with equal importance! Their sincerity in their quest to counsel, comfort, and educate resonates during all conversations. The information goes beyond self coping skills, it transforms into assisting others on the same treacherous path. While I was blessed to have good results, the fact remains that most of us still have families that are affected; which is why we were tested. The continued genuine concern from Wes and BJ has been pivotal in facing HD from the side of a care giver! I feel empowered just knowing I can call on them with questions in my future! If you want those who truly understand Huntington’s Disease, and are caring, knowledgeable and most current on medial interventions then BJ and Wes are the people you want leading your path! Each walk is different but they are prepared for your own beginning steps to guide your path! I am so thankful that God led me to HDGenetics!
I did test positive, but I am at peace with that. I can make good choices, now that I am informed.
I didn’t know Huntington disease even existed until my brother was diagnosed 2 months ago. I was told that I also had a 50 percent chance of having this mutated gene from my father. I began doing diligent research and discovered HD genetics by pure chance. I reached out and filled out an online survey. They got back to me immediately and have been absolutely phenomenal. Wes and Erin have to give people a possible life ending result daily, but they do it with such professionalism and grace, and that really puts you at ease. I did test positive, but I am at peace with that. I can make good choices, now that I am informed, regarding my future. I have an amazing support person in my husband and we are prepared for whatever comes out way. My daughter is now getting tested with HD Genetics. My main reason for me wanting to get tested is because my children are at risk now, and they are at the age where they may be wanting to have children. I would love nothing more then for me to be the last person in my family at has this, but if they do have it as well- there are resources for having HD negative children. This was amazingly easy process that I didn’t even have to leave home for. They mail you the saliva kit and you mail it right back in their prepaid envelope. I would very highly recommend them if you are seeking answers.
Easy counseling and testing process. Fair price. Expected timeline was met.
Easy counciling and testing process. Fair price. Expected timeline was met. No complaints.
I switched to HD Genetics after a Center of Excellence. The genetic counseling was equally as thorough.
I began my genetic counseling with an HD Center of Excellence, but switched to HDgenetics after finding out about it from Reddit. After a quick survey, I quickly scheduled an interview with Wes. The genetic counseling was equally as thorough and informative as the Center of Excellence. The convenience of completing virtual counseling and an inexpensive at-home saliva test made the process go very quickly. My results came back within 3 weeks and they were comprehensive; including my CAG numbers and scientific data about Huntington’s Disease. I would absolutely recommend HDgenetics and have already to my extended family who is also beginning the testing process. Testing with HDgenetics made me and my husband more comfortable with the idea of genetic testing. We’re really grateful for this service.
It took me over a year to get an answer before I found them. Once I found them I got my results within a month!
Everyone was so helpful and supportive. It was very easy to get the testing and the results. It took me over a year to get an answer before I found them. Once I found them I got my results within a month! Amazing service and everyone who needs to know if they have HD should use this service.
HD Genetics was a breath of fresh air. I didn't feel like I was doing this alone.
HD Genetics was a breathe of fresh air! I’ve always heard horror stories about the testing process based on experiences from some of my family members. This was 1 of the reasons I was hesitant to even get tested. Wes Solem was very knowledgeable and supportive during the entire process. Though the results I received were not ‘Ideal,’ I took comfort in the fact that I didn’t feel like I was doing this alone. HD Genetics also provided some great resources to help guide us through the next steps. Thanks again!
Once I discovered that anonymous testing was even possible, they became the obvious choice.
I am so grateful for the services of HD Genetics. The period between knowing I might have HD and getting my results was one of the most difficult of my lifetime — for me and my family. There was the uncertainty of the future and also the tendency to imagine the worst. During this trying time, my experience with HD Genetics was a bright spot. Once I discovered that anonymous testing was even possible, they became the obvious choice due to both the cost and the seriousness of their enterprise (even my local HD Center of Excellence supported the decision). The website and materials were incredibly clear about the services offered and the process. There were no surprises. The staff were a fount of knowledge and incredibly professional. Having the testing and results process be easy, transparent, and affordable was the greatest gift. Thank you for making this service available and for supporting the HD community.
I did not have to wait 6 more months to see a neurologist.
Because I got my DNA test through HD genetics I did not have to wait 6 more months to see a neurologist and am doing accommodations at work to help me work as long as I can with less problems.
My Neurologist recommended HD Genetics to me. The entire process was incredible.
My Neurologist recommended HD Genetics to me for counseling and testing. The entire process with HD Genetics was incredible. They were very responsive and informative. The counselors were very kind, compassionate and so helpful.