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  • Service 01 — Genetic Testing & Counseling

At-Home Huntington's Disease Genetic Testing & Counseling

A complete, private testing experience guided by a Certified Genetic Counselor — from your first conversation through your results, and the support that comes after.
See How It Works
Begin Your Intake Form

100% Virtual

No clinic visit required.

Anonymous

Pseudonym option available.

30–45 Days

From intake to results.

Genetic Testing Designed Around You

Deciding whether to test for the Huntington’s disease gene is one of the most personal choices a person from an HD family can make. We built HD Genetics to make that choice — and the entire process around it — easier, more private, and more compassionate.
Our Certified Genetic Counselor walks with you from your very first question to your results disclosure and beyond. No rushing. No cookie-cutter protocols. No unexpected charges. Just thoughtful, expert care from a team that lives and works inside the HD community.
  • Wes Solem, ScM, CGC — Director of Genetics

You'll Work With Wes — Every Step of the Way

Wes is a Certified Genetic Counselor through the American Board of Genetic Counseling. He earned his Master of Science in Genetic Counseling from Johns Hopkins University and has personally guided more than 1,500 individuals through HD genetic testing.

From your first conversation through your results — and any follow-up after — Wes is your dedicated point of contact. No handoffs, no rotating staff, no being passed between people who don’t know your story.

Begin Your Intake Form

Everything That's Included in Your Care

One flat fee. Six full benefits. No add-ons, no surprise bills — and financial aid is available for those who need it.
Pre-Test Genetic Counseling

A no-cost virtual session with our Certified Genetic Counselor before you decide whether to test. You only pay if you choose to move forward.

At-Home Saliva Collection Kit

A simple saliva kit shipped to your address with a pre-paid FedEx return label. No blood draw — same diagnostic accuracy.

Laboratory Analysis

Full CAG repeat analysis processed by our HIPAA-compliant partner laboratory.

Results Disclosure Session

A private, unrushed video session where your counselor walks you through your results and what they mean for you and your family.

Written Test Report

A detailed report from our partner laboratory delivered to your email, plus an HD resource guide tailored to your situation.

Lifetime Follow-Up Access

Schedule additional sessions with our team anytime in the future — at no extra cost — to discuss results, family planning, research, or care navigation.

For comparison, a 2017 study of 777 tests at HD Centers of Excellence in the U.S. reported an average cost of $1,157.

How HD Genetic Testing Works

A clear, five-step process you can move through at your own pace. Most clients complete the full journey in 30 to 45 days.
1. Intake Form & Intro Call

Fill out our intake questionnaire — it takes about 5 minutes. Within a couple of days, you'll receive a text from our genetic counselor, Wes Solem, to schedule a brief intake call to confirm your interest, answer any questions, and book your first appointment.

Timeline: Days 1–10
2. No-Cost Genetic Counseling Session #1

A 45-minute to 1-hour virtual session with Wes Solem, our Certified Genetic Counselor. We'll discuss what testing involves, possible outcomes, your family situation, and any concerns. You only pay if you decide to proceed with testing after this session.

Timeline: Days 10–15
3. Saliva Kit Sent to Your Door

If you choose to move forward, we mail a saliva collection kit to the address you provide. It comes with simple instructions and a pre-paid FedEx return label. Provide your sample on your own schedule and drop it back in the mail.

Timeline: Days 15–24
4. Results Disclosure Session

Approximately three weeks after your sample arrives at the lab, we'll meet again virtually. Wes will share your results in a private, unrushed conversation and answer every question you have. You'll receive a copy of your test report and an HD resource guide.

Timeline: Days 35–45
5. Follow-Up & Continued Support

About a week after your results, we check in to see how you're doing. From there, you have lifetime access to our team — schedule additional conversations whenever you need, whether to revisit your results, discuss family planning, learn about clinical trials, or get connected to specialized HD care.

Timeline: Day 47 onward
Timelines are estimates. We never rush the process — you can take more time between steps if you need it.
Begin Your Intake Form
  • Privacy & Anonymity

Anonymous HD Testing — How It Works

Many people from HD families want to keep their genetic results out of their medical records and away from their insurance company. We support that choice fully.

If privacy is your priority, you can use a pseudonym (a fake name) throughout the entire testing process. We’ll walk you through what that means, the trade-offs to consider, and how to choose the path that fits your situation.

Begin Your Intake Form

Your Privacy Is Protected By:

  • Optional pseudonym throughout testing
  • Results never added to your medical record
  • Information never shared with insurance
  • HIPAA-compliant data storage
  • No marketing, no fundraising outreach

Understanding Your Results: The CAG Repeat

Huntington's disease genetic testing measures how many times a small DNA sequence — called a CAG repeat — appears in the HD gene. The number of repeats determines what your result means for you and your family.
26 or fewer repeats
Normal Range

Will not develop Huntington's disease. Children are not at risk.

27–35 repeats
Intermediate

Almost certainly will not develop Huntington's disease, but a small risk (about 2–5%) of passing an expanded gene to children.

36–39 repeats
Reduced Penetrance

May develop symptoms at an older age — but it's not certain. Each child has a 50% risk of inheriting the expanded gene.

40 or more repeats
Full Penetrance

Will develop symptoms of Huntington's disease in their lifetime. Each child has a 50% risk of inheriting the expanded gene.

Whatever your result, your counselor will walk you through what it means — including what it doesn't tell you, like exactly when symptoms might begin. Learn more about HD genetics →

Is HD Genetic Testing Right for You?

Our genetic testing service is designed for adults from HD families who are ready to explore predictive testing.
Huntington's Disease Genetic Testing & Counseling
  • You are at-risk for Huntington's disease (have a biological parent, grandparent, or other family member with HD)
  • You are 18 years of age or older
  • You are living in the United States
  • You are interested in pursuing genetic counseling and testing
Huntington's Disease Genetic Testing & Counseling

We currently do not test individuals under 18 years old. If you have a unique circumstance involving a child you suspect may have juvenile HD, please reach out to discuss.

If you’ve already been tested elsewhere, we still welcome you for a complimentary session to discuss your results — and our free Clinical Trial Connection service is open to you regardless of your testing history.

If you are not yet sure whether testing is right for you, that’s perfectly fine. You can speak with our counselor at no cost before deciding anything.

Payment Options

We're flexible about how you pay — and we never bill insurance.
Debit / Credit Card

All major cards accepted. Card details are processed securely and not stored by HD Genetics.

HSA / FSA Cards

Use your Health Savings Account or Flexible Spending Account just like any other card.

Money Order

Prefer not to use a card? Mail us a money order — just ask our team for the address.

We do not bill insurance — and that's intentional. Keeping insurance out of the process means your results stay private. If you'd like to submit your receipt to your insurer for possible reimbursement after testing, we can provide guidance.

HD Genetic Testing FAQs: What to Know Before You Test

Quick answers to the most common questions about Huntington's disease genetic testing — from saliva test accuracy to insurance privacy and what happens if you change your mind partway through.
Yes. The saliva test we use has the same diagnostic accuracy as a blood draw for measuring CAG repeats in the HD gene. It's processed by our HIPAA-compliant partner laboratory.
You can stop the process at any point — even after you've provided your saliva sample. Some clients choose to have their sample held by the lab and only retrieve their results when they feel emotionally ready. Testing is your decision, on your timeline.
We do not share your results with any insurance company. Your results never appear in your medical record automatically. If you have existing life insurance or long-term care insurance in place before testing, it will not be affected. Your counselor can walk you through insurance considerations during your first session.
Absolutely — and we encourage it. Having a trusted person with you during counseling and your results disclosure can be a meaningful source of support. Just let your counselor know in advance who will be joining.
Read All FAQs →
  • MEET US — NO COMMITMENT REQUIRED

Talk to Our Team Before You Decide Anything

We host free, drop-in Office Hours every month — and a live Q&A every week. No intake forms, no signup, no obligation. Just show up and ask whatever you want about HD genetic testing, clinical trials, or our team.

Open Office Hours With Wes

Join Wes Solem, our Director of Genetics, in a free virtual room — first Wednesday of every month. Come with questions, come just to listen, or bring a family member. There’s no script and no agenda beyond your needs.
  • When: First Wednesday of every month
  • Time: 12:30 PM EST · 11:30 AM CST · 9:30 AM PST
  • Where: Virtual via doxy.me/HDgenetics
  • Hosted in partnership with: HD Reach
Join Next Office Hours

Live Q&A on Instagram

Every Tuesday at 11 AM EST, our team goes live on Instagram to answer real-time questions from the HD community. Follow us to get notified and ask anything from your phone.
  • When: Every Tuesday
  • Time: 11:00 AM EST
  • Where: @HD_Genetics on Instagram
Follow @HD_Genetics