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  • SERVICE 02 — CLINICAL TRIAL CONNECTION

Connecting You to Huntington's Disease Clinical Trials — At No Cost

Personalized matching to HD clinical and observational studies, guided by our HD research experts.

Get Connected — Free
See How It Works

100% Free

Always. No fees, ever.

All HD Families

Gene-positive, negative, at-risk.

HSG Partnership

Powered by the Huntington Study Group.

  • THE PROCESS AT A GLANCE

How We Connect You to HD Clinical Trials

Three simple steps. No fees. No pressure. Just real connections to the studies that may be right for you.

Fill Out an Intake Form

Share some basic information about yourself, your situation, and your interests in HD research.

Have a Call With Our Team

B.J. and our team will learn more about you, answer your questions, and understand what matters most to you.

Get Connected to Trial Coordinators

We connect you directly with clinical trial coordinators based on your interests, eligibility, and location.

Clinical Trial Connection Designed Around You

2026 is shaping up to be a landmark year for Huntington’s disease research, with as many as five companies actively enrolling participants in the United States. The HD community has never had more opportunities to be part of progress — and our job is to make sure you don’t miss them. Whether you’ve been tested, are at-risk, or simply part of an HD family, our HD research experts help you understand what’s available, what each study involves, and which ones may be a fit for your situation — all at no cost, on your own timeline.
  • YOUR TRIAL CONNECTION LEAD

B.J. Viau (View) — Personally Guiding You Through HD Research

B.J. founded HD Genetics from a place of lived experience — and that same experience guides every Clinical Trial Connection conversation. Since his mother’s diagnosis with HD in 1995, B.J. has spent three decades inside the HD community, including 15+ years working in the pharmaceutical industry where he played a role in the launch of the first FDA-approved medicine for Huntington’s chorea.

What makes B.J. uniquely positioned to help connect you to research is that he has personally participated in multiple HD studies himself — including PREDICT-HD, PREVENT-HD, ENROLL-HD, and HD Clarity. He understands what enrollment feels like from the participant’s side: the questions you’ll have, the time commitment involved, the emotional considerations, and what to expect at study sites.

B.J. also serves as a trusted bridge between HD families and the pharma and biotech companies actively working on treatments — relationships built through his role at PatientViau and his decade of leadership on the HDYO Board. When you talk with B.J., you’re getting a participant’s perspective combined with deep knowledge of every company currently running HD trials.

Reach B.J. directly about HD research opportunities

Everything That's Included in Your Connection

One free service. Six full benefits. No fees, no insurance billing, no obligation to participate in anything.
Initial Consultation

A free, no-pressure conversation to understand your situation, your goals, and your comfort level with research participation.

HD Research Education

Plain-language walkthrough of the current HD research landscape — clinical trials, observational studies, and what each one involves.

Personalized Trial Matching

We identify studies that may be a fit based on your location, health history, gene status, and personal preferences.

Direct Site Introductions

We connect you directly with research teams at study sites — no cold calls, no lost referrals, no navigating the system alone.

Powered by HSG Partnership

Our partnership with the Huntington Study Group gives you access to the most up-to-date information on enrolling studies nationwide.

Ongoing Updates

As new trials open, we proactively reach out — so you stay informed about future opportunities for as long as you'd like.

  • WHAT MAKES US EXPERTS

The Three Things HD Genetics Knows Better Than Anyone

Navigating HD research isn't just about lists of studies — it's about knowing what's enrolling right now, what each trial actually requires, and how to get you in front of the right people. That's what we do, all day, every day.
We Know What's Enrolling — Right Now

The HD clinical trial landscape changes constantly. Pharma and biotech companies open new studies, close enrollment, and shift recruitment criteria month to month. Through our partnership with the Huntington Study Group (HSG) and our direct relationships with sponsors, we know what's actively recruiting today — and what's coming next month.

We Know the Qualifications That Actually Matter

Every HD study has its own eligibility criteria — gene status, age, symptom stage, prior treatment history, geographic location, and more. We help you understand which trials you may qualify for before you spend hours filling out screening forms, so your time goes toward studies that are realistic possibilities.

We Have Real Relationships With Study Sites

HD Genetics works directly with clinical trial sites and coordinators across the country. When you're ready to explore a study, we don't hand you a website link — we make an introduction. That means faster responses, clearer next steps, and a personal connection from day one.

  • A LANDMARK YEAR FOR HD RESEARCH

2026 — The Most Active Year in HD Research History

For decades, families affected by Huntington’s disease have waited for breakthroughs. In 2026, as many as five pharmaceutical and biotech companies are actively enrolling participants in HD clinical trials across the United States and Canada — alongside dozens of observational studies tracking the natural history of the disease. Every participant — whether gene-positive, gene-negative, or at-risk — contributes to research that could change the future for the entire HD community. Our role is to help you understand what’s available and connect you with the studies that fit your life.
Begin Your Intake Form

What's Currently Enrolling Includes:

  • Disease-modifying therapy trials
  • Observational and natural history studies
  • Biomarker and early-detection research
  • Studies for pre-symptomatic gene carriers
  • Studies for gene-negative family members
  • Symptom management clinical trials
Specific studies change frequently. During your free consultation, B.J. will walk you through.

How HD Clinical Trial Connection Works

A simple, supportive process designed around you. There's no rush, no commitment, and no cost.
1. Fill Out the Intake Form

A short questionnaire to tell us a bit about your situation — gene status (if known), location, and your interests in HD research. Takes about 5 minutes.

2. Schedule a Call With Our Team

After your intake form, our team reaches out to find a time that works for you. You'll book a virtual conversation with our Genetics Team — no commitment, no cost.

3. Have a Conversation With HD Genetics

Meet virtually with B.J. Viau (View), our Founder and HD research expert

4. Get Customized Trial Connections

Based on your interests, location, and qualifications, we provide personalized connections to clinical and observational studies that may be a fit. Drawing on our partnership with the Huntington Study Group (HSG), we identify what's currently enrolling and what's coming soon.

5. Stay Connected as New Trials Emerge

HD Genetics is always here. As new trials open and the research landscape evolves, you can reach out anytime — and we'll proactively share new opportunities as they become relevant to your situation.

No rush, no commitment, no cost — ever. Our team is here whenever you're ready.
Begin Your Intake Form

Understanding the Types of HD Studies

Not all research looks the same. Here are the main categories of HD studies you may be matched with — each with a different goal, time commitment, and level of involvement.
OBSERVATIONAL STUDIES
Natural History Tracking

No medication, no intervention. Researchers track how HD develops over time. Often the easiest way to contribute — sometimes just an annual visit or questionnaire.

BIOMARKER RESEARCH
Early Detection Studies

Researchers collect samples (blood, saliva, imaging) to identify biological markers that signal HD progression — often before symptoms appear.

INTERVENTIONAL TRIALS
Disease-Modifying Therapy

Clinical trials testing whether new treatments can slow, halt, or reverse HD progression. Involve regular visits, monitoring, and sometimes a placebo group.

PRE-SYMPTOMATIC STUDIES
Research Before Symptoms

Studies designed specifically for gene-positive individuals not yet experiencing symptoms — among the most impactful for future treatments.

SYMPTOM MANAGEMENT TRIALS
Symptom-Focused Treatment Studies

Clinical trials testing therapies designed to manage specific HD symptoms — such as chorea, mood changes, or cognitive challenges. Often involve participants who are already experiencing symptoms.

Whatever your situation, your counselor will walk you through which study types fit you best — and there's no obligation to enroll in any of them.

Is HD Clinical Trial Connection Right for You?

Our connection service is open to almost anyone touched by Huntington's disease.
You're a Good Fit If:
  • You're part of an HD family — gene-positive, gene-negative, at-risk, or related
  • You're 18 years of age or older
  • You're living in the United States or Canada
  • You're curious about HD research — even if you're not sure you want to participate
A Few Notes:
This service is completely free regardless of whether you decide to enroll in any study. There’s no obligation, ever.

Why This Service Is Always Free

A clinical trial connection service shouldn't have a paywall.
Funded by Mission, Not Fees

HD Genetics created this service because every person in an HD family deserves access to current research opportunities — regardless of their financial situation.

Powered by HSG Partnership

Our partnership with the Huntington Study Group gives us direct access to up-to-date study information, so we can connect you efficiently without intermediaries.

No Insurance, No Strings

We never bill insurance for this service, and there's no requirement to enroll in any study after our conversations. You're free to walk away at any point.

This service is a complement to — not a substitute for — direct clinical care. We work alongside HD Centers of Excellence, neurologists, and primary care teams.

HD Clinical Trial FAQs: What to Know Before You Connect

Quick answers to the most common questions about participating in Huntington's disease research — from what's involved to how your privacy is protected.
No. Many HD studies actively enroll gene-negative family members, at-risk individuals, and people who have not been tested. Some of the most valuable research involves comparing data across the full HD family — including those who don't carry the gene. During your consultation, B.J. will walk you through what each type of study looks for in participants.

Not necessarily. Many HD studies are observational — meaning they track natural disease progression without any medication or intervention. Other studies involve biomarker collection (blood, imaging, cognitive testing), and only a portion are interventional trials testing new treatments. You decide which type of study, if any, you participate in.

That depends on the specific study and how you choose to engage. Some research is conducted entirely outside of clinical care systems, while others integrate with your existing medical team. During our consultation, we'll discuss your privacy preferences and help you understand the privacy implications of each study before you commit to anything.

It depends on the study. Some observational studies and biomarker research can be done remotely or with a single annual visit. Interventional trials typically require more frequent in-person visits at a designated research site. B.J. will help you identify studies that match your location and travel preferences.

Wonderful — and your trial connection is even more straightforward, since we already know your gene status. You'll move directly from a brief intake conversation to discussing relevant studies. The Clinical Trial Connection service is open to all HD Genetics clients at no additional cost.

Read All FAQs →
  • MEET US — NO COMMITMENT REQUIRED

Talk to Our Team Before You Decide Anything

We host free, drop-in Office Hours every month — and a live Q&A every week. No intake forms, no signup, no obligation. Just show up and ask whatever you want about HD genetic testing, clinical trials, or our team.

Open Office Hours With Wes

Join Wes Solem, our Director of Genetics, in a free virtual room — first Wednesday of every month. Come with questions, come just to listen, or bring a family member. There’s no script and no agenda beyond your needs.
  • When: First Wednesday of every month
  • Time: 12:30 PM EST · 11:30 AM CST · 9:30 AM PST
  • Where: Virtual via doxy.me/HDgenetics
  • Hosted in partnership with: HD Reach
Join Next Office Hours

Live Q&A on Instagram

Every Tuesday at 11 AM EST, our team goes live on Instagram to answer real-time questions from the HD community. Follow us to get notified and ask anything from your phone.
  • When: Every Tuesday
  • Time: 11:00 AM EST
  • Where: @HD_Genetics on Instagram
Follow @HD_Genetics